ScoliCare

Empowering Scoliosis Patients on Their Path to Recovery

Digital Home Support, Motivation & Pain Management for Patients and their Parents with scoliosis problems – a Comprehensive Digital Approach

Type: Health Pilot NCRD, DAM

Duration: 2028

A Leap Forward in Scoliosis Treatment: A Digital Solution

Scoliosis, a condition where the spine rotates around its axis while simultaneously curving sideways, often in an S- or C-shape, is a prevalent issue. The most common form, Adolescent Idiopathic Scoliosis (AIS), typically develops between the ages of 10-15 and is more prevalent in girls. The primary treatments include braces for those still in their growth phase, and surgery for severe cases. For those who have completed their growth phase or adults with a less pronounced curve, treatment options are limited.

Patients with severe scoliosis may face challenges such as impaired lung function and mental health issues. Hence, regular exercise is often recommended. However, we at the Back Association have identified that there is a significant need for information and better follow-up, especially concerning scoliosis-specific training.

The Need for a Digital Solution

In an effort to fill this gap, we are eager to contribute to the development of a digital solution that can support scoliosis patients and their parents outside of the healthcare system. We have found that scoliosis patients and their families need better ways to:

  1. Communicate with experts and among themselves,
  2. Support and stay motivated to perform daily physiotherapy activities,
  3. Cope with the anxiety and uncertainty caused by the disorder and associated pain.

Despite the clear need, there are currently no digital solutions available in Norway or globally that cater to these specific needs.

Our Proposal: A Comprehensive App

Our proposed solution is a comprehensive app that offers support, information, and motivation to scoliosis patients and their families. We are seeking funding to develop a robust prototype of this digital solution, which can be tested and implemented with minor changes.

Our app will aim to improve the treatment for scoliosis patients, facilitate better communication between healthcare personnel and patients, and offer much-needed support for patients’ relatives.

Overcoming Challenges

We understand the challenges that come with scoliosis— the difficulty in motivating children to exercise, the stigma and discomfort around brace use, and the anxiety in the waiting period before surgery. Our digital solution will provide clear and accessible information and guidelines on the patients’ terms.

Key Features of the App

Our digital solution will:

  1. Increase health competence with short video clips, articles, and quizzes.
  2. Encourage training with reliable exercise routines, video demonstrations, and progression tracking.
  3. Provide an overview of progression about well-being and activities through a digital diary.
  4. Offer resources in the health system and the Back Association such as contact with support groups with other patients and contact with their own doctor and psychologist.
  5. Create social features where participants can exchange their experiences

In conclusion, the project is committed to improving the lives of scoliosis patients and their families. We believe that a digital solution can significantly enhance their treatment and coping strategies, and we are eager to make this vision a reality.